Few historical accounts about HIV-AIDS have comprehensively interrogated how the disease factored in the lives of American children and the nurses that cared for them. This Bates Center seminar shows how nurses, grandmothers, foster parents, foster care facilities, and other health care professionals comprised a network of care that helped treat children with AIDS in the years before the development of effective antiretroviral therapies.
Speaker: Jason M. Chernesky, PhD Candidate, University of Pennsylvania
Numerous academic and popular accounts about HIV-AIDS have been written. They show how gay male activists, physicians, politicians, and the public were affected by, and responded to, an epidemic that took many Americans by surprise when it emerged in the early 1980s. But few historical accounts about HIV-AIDS have comprehensively interrogated how the disease factored in the lives of American children and the nurses that cared for them. Taken from my dissertation, “The Littlest Victims”: Pediatric AIDS and the Urban Ecology of Health in the Late Twentieth-Century United States, my paper shows how nurses, grandmothers, foster parents, foster care facilities, and other health care professionals comprised a network of care that helped treat children with AIDS in the years before the development of effective antiretroviral therapies. Using a pediatric AIDS-care center in Newark, New Jersey as my lens, I explore the central role nurses played in caring for children and families with HIV-AIDS in the late 1980s through the mid-1990s. In addition to the work of pediatric-AIDS nurses, the tapestry of experiences and actors presented in my paper reminds us how a demographically representative portrait of the epidemic – sensitive to place, race, and the politics of representation – is imperative when understanding the full scope of the AIDS experience in the United States.
Contact the Center for more information regarding supplemental readings.
Bio: Jason M. Chernesky is a PhD candidate in the History and Sociology of Science at the University of Pennsylvania. He specializes in the histories of U.S. healthcare, public health, children’s health and environmental history in the twentieth-century United States. Jason’s dissertation explores the intersecting histories of pediatric AIDS, post-World War II children’s health care, and the American inner city. His dissertation reveals what happens when a disease associated with the taboo behavior of adults begins affecting infants and children. Jason is currently the Mellon Foundation’s Humanities and Urban Design Initiative Dissertation fellow at Penn’s School of Design.
The idea that so-called races reflect inherent biological differences between social groups has been a prominent aspect of Western thought since at least the Enlightenment. While there have been moments of refuting this way of thinking—most notably, the social constructionist thesis emerging as a dominant framework in the aftermath of WWII—fixed biological conceptions of race haunt new genetic technologies, where race is thought to be measurable at the molecular level. Keel argues that the resilience of this naturalized understanding of race may stem less from overtly political motives on the part of scientists and more from our inherited theological traditions that predate the Enlightenment and continue to shape and limit the intellectual horizon of scientific reasoning.
Health care reform has taken center stage during presidential primary season, as candidates offer diverse proposals to expand insurance coverage and contain costs. This one-day conference draws together researchers, policymakers, providers, and other stakeholders to dive into key and thorny issues with no easy answers.
Paul Starr, Ph.D. -- Princeton University
Sherry Glied, Ph.D. -- New York University
Julian Harris, M.D. -- Deerfield Management
Allison Hoffman, J.D. -- University of Pennsylvania
Rodney Whitlock, Ph.D. -- McDermott+Consulting
Questions? Contact Melissa Ostroff
Maria Polyakova, PhD, is an Assistant Professor of Health Research and Policy at the Stanford University School of Medicine. Her work investigates questions surrounding the role of government in the design and financing of health insurance systems. She is interested in how public subsidies affect health insurance markets, what characterizes efficient public or private health insurance contracts, whether innovative health insurance contract design that mimics the behavior of experts could improve population health, how the structure of health insurance systems may affect the degree of inequality in health outcomes, as well as in how individuals make decisions about their health insurance plans, and the role of insurance in determining the structure of provider labor markets.
This event is free and open to the public, but please register.
Supported decision-making is a model of decision making in which an adult with diminished capacity enters into an agreement with a closely trusted person or persons to support him or her in exercising self-determination. Nationally, there is growing recognition that supported decision-making is a viable—and indeed a clinically, legally, and ethically preferable—alternative to guardianship.
Now, there is growing interest in the Commonwealth of Pennsylvania in supported decision-making for older adults with cognitive impairment. How can this work in practice? e overarching purpose of this conference is to gain diverse perspectives on how to implement supported decision making in Pennsylvania.
Lectures and Panel
11:30 - 3:45 PM
(Keynote Lecture with Lunch: 12:00 - 1:00 PM)
Jordan Medical Education Center (JMEC)
Seminar Room 516 EW
3400 Civic Center Blvd., Phila., PA 19104
University of Pennsylvania
3:45 - 5:00 PM
JMEC Lobby area, 1st Floor
Speakers & Panelists:
Nina Kohn, JD
Emily Largent, JD, PhD, RN
Hon. Lois Murphy
Karen Buck, JD
Jason Karlawish, MD
Charlie Sabatino, JD
Lunch will be provided.
Supplemental Reading: Gamble V. N. (2016). “Outstanding Services to Negro Health”: Dr. Dorothy Boulding Ferebee, Dr. Virginia M. Alexander, and Black Women Physicians’ Public Health Activism. American journal of public health, 106(8), 1397–1404. doi:10.2105/AJPH.2016.303252
Please contact the Center for questions regarding the supplemental reading.
In 1897, the U.S. Army Medical Museum transferred 3,761 sets of human remains to the Smithsonian Institution. The vast majority of the skeletons were those of indigenous people - predominantly Native Americans living in what is now U.S. territory. But these were not the only skeletons shipped for safekeeping to the nation’s attic. Indeed, projects to collect human remains for US and European museums were becoming increasingly global and efforts to collect, study and preserve reached many non-white communities across the US and around the world. This talk argues that efforts to document and study black bodies and lives shifted over time, with important turning points and key figures often being overlooked. This story sheds additional light on the history of anthropology, museums, and science in the US and beyond.
Opening in 1937, St. Louis’s Homer G. Phillips Hospital emerged as the largest segregated African American hospital and one of the largest general hospitals in the United States. The municipal teaching hospital was a prominent provider of public health care to African Americans in St. Louis and in the Midwest. Moreover, the prestigious teaching hospital was known as a training ground for African American nurses, allied health professionals, and medical specialists who were barred from other opportunities. Yet the case of “Homer G.” as it has come to be affectionately known by Black St. Louisans is instructive as it represented much more than public hospital care. The hospital, and the historical context in which it was born and operated, speaks to a history of inclusion and exclusion in the history of medicine. This talk builds upon Ezelle Sanford’s dissertation research as he begins to formulate a book project, Segregated Medicine: The Homer G. Phillips Hospital Story (1937-1979)which employs a ground-level perspective to track a much larger history of segregated health care in St. Louis and in the United States over the course of the twentieth century. He argues that the social values and physical demands of the Jim Crow era shaped and reshaped the modern US health care system. This talk outlines the exigent circumstances that established segregated public health care, supported by the unlikely political alliance between white municipal leaders and African American elites, and its intertwined promises and perils in the medical arena.
The goal of the Summit is to bring together individuals with a variety of backgrounds to identify evidence-based programs, strategies, approaches, and other research that can be used to improve the care, services, and supports of persons with dementia and their caregivers. This Summit followed the example of previous Alzheimer’s Disease (AD) and Alzheimer’s Disease-Related Dementias (ADRD) summits organized primarily by the National Institute on Aging (NIA) and the National Institute on Neurological Disorders and Stroke (NINDS), respectively. Each summit produces research recommendations that reflect critical scientific priorities for research. The primary anticipated outcome of the 2020 summit is to elicit recommendations for research priorities to inform federal agencies, foundations, and private sector organizations.
In an October 2018 article in The Guardian, Harvard lecturer Siddharth Kara describes the back-breaking work of searching for cobalt by 15-year-old Elodie, who is exposed to toxic dust in the process. Elodie sells her cobalt to Chinese distributors who export and refine the mineral in China then sell it to tech companies to power our digital devices such as smartphones, laptops, and tablets. These devices are then used to power important online activism, including disability justice work. As Elodie and 35,000 other Congolese children negotiate dangerous working conditions that impair their health, Western consumers enjoy the fruits of their debilitating labor to fight for their own rights in the ableist infrastructure of the West. What might be possible if the supply chain was no longer imagined as linear but circular? How might a new set of relations between consumers and laborers create the kind of advocacy that would force corporate entities to change their policies if they have to be accountable to both groups? I argue that closing the supply chain into a loop is essential as it effectively links Environmental, Labor, Racial, Gender, and Disability Justice movements to each other in a way that ripples beyond any one movement. Using a Black Feminist Disability Framework this project examines the debilitating impact of mineral harvesting on the Black Congolese youth who do this work, and the digital disability activism their labor enables in the West.